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I felt the need to get something off my chest. I could've written it myself privately, but I felt I needed to speak of it through this medium, where I speak as though I'm speaking to someone. This is what feels necessary, as this whole thing has been distracting and bothering me greatly. Perhaps a good ol' confession won't absolve me from my sins (whatever those are), but it will at least keep me away from my silence.

I'll start by saying this: autistic people are greatly determined by their interests. Throughout my life, I've had a clash between two factors of my self-identity: my "obsessions" and my autism. I didn't want to identify with the latter, so I sunk all my time and energy into my obsessions or interests, or however you want to refer to them. (They were called "obsessions," "special interests," or "hyper-fixations" when I was younger.)

When I was very young, my special interests were lining up marbles and watching water run down the driveway. When I grew a little older, it was video games. When that petered out in my adolescence, I turned to fly fishing. If you don't know what that is, that's okay. Imagine fishing, except the lures (referred to as flies) you use are far lighter, and the weight you cast into the water isn't the fly, but the line itself. You can look up videos of fly fishing on YouTube and you'll see that the way you cast a fly rod is different from the way you'd cast more conventional gear. The casting form is quite elegant and pleasing to look at.

In my adolescence, I grew increasingly disgruntled and dissatisfied with the world around me. I felt disconnected and alienated from my peers. The few friends I did have kept their share of distance from me. We never shared a strong degree of intimacy. I don't blame this on them--I was going through my own issues and problems that made it difficult to connect with people. My former devotion to playing video games was also diminishing, and that old spark of passion I felt towards them was fading. I needed a new interest to sink my time into. There were a few requirements: it had to feel relaxing, it had to be complex and fulfilling, and it had to require a minimum of people (as I didn't have much friends). I didn't consciously speak of these requirements to myself, but what I sought for involved these things, whether I knew it or not.

I ultimately found that fishing looked interesting. I started watching a lot of content related to fishing on YouTube, such as Jon B. and others. They took a completely different stance towards "nature" than I did when I was younger: their love for fishing connected them with the water in a way I hadn't seen before.* However, their form of fishing wasn't completely satisfying to me. They primarily fished on gas-guzzling bass boats in the middle of big reservoirs. This had its appeal at first, but I felt it was missing what fishing was at its roots. Fishing didn't involve catching the greatest number of fish; rather, it involved a deep and sustaining connection with nature. It involved learning the water, its trends, and its eccentricities through your own will.**

My brother, learning that I had grown interested in fishing, lent me his copy of the Orvis Guide to Fly Fishing. I remember the first time I read this guide vividly. Looking back on it now, it reminds me of the times when I was even younger where I'd flip through Thomas the Tank Engine catalogues, admiring the beautiful toy train pictures. We had to drop him off at the college he was attending up near the mountains, and as we drove, I got to see beautiful creeks and rivers and gorgeous terrain. I was reading the guide as we drove, and I imagined myself, fly rod in hand, fishing there.

At that moment, I no longer saw myself as any mere ordinary angler, but as a fly fisher. Learning the knots surrounding fly fishing and the casting technique taught me that my deficits in motor skills weren't set in stone. They could be improved--I could defy the limitations imposed upon me by my diagnosis. My parents grew increasingly impressed with my abilities and this was a massive boost to my marginal self-esteem. Eventually, I started to design my own flies via learning the art of fly tying. I grew increasingly capable of tying complex flies that required difficult techniques, and my brothers would ask for flies from me.

Fishing also provided me numerous bonding experiences with my brothers. I had few friends, but at least my brothers could keep me company. We'd drive to lakes, creeks, and rivers and fish our time away. When I was feeling down in the dumps and depressed, fishing had a way of reinvigorating my spirits in a way nothing else had. I regained the spark for life that faded during my time in school. I grew more resentful of school and saw it as taking away my experiences with fishing.

I have numerous anecdotes and stories from these times, but I'll fast-forward to what I actually wanted to talk about. A few years later and I had become an adept angler. I was by no means a master at the art, but I consistently impressed myself with my fishing and tying skills. I could actually say I was good at something!

One cold November day I decided to fish at a river that took awhile to get to. When my Dad and I had finally got there, I decided to cast my fly towards some fish I saw biting around close by upstream. We had been fishing there for awhile. I had noticed, on the other side of this large river, some adolescent boys emerge that were perhaps a few years older than I was at the time. There were some geese gently floating downstream.

Suddenly, I heard the sound of stones plopping into the stream. I then saw that the kids I noticed before were throwing the stones at them. I felt paralyzed: I wanted them to stop throwing stones at the goose but I couldn't speak up. My Dad eventually told them to stop, but it was too late: the goose was floating downstream, lifeless.

The feelings that occurred after this are difficult for me to describe. I couldn't rationally comprehend what had just happened. Factually, the incident was simple enough. Some kids had decided to throw stones at a goose and murdered it. However, when it came to deciphering why the kids had chosen to do this, I simply couldn't understand what they had done. Why murder a goose with no intention to eat it, as a hunter would? Why this time? Why this place? What was your intentions? The answers to these questions completely eluded me, and to an extent, they still do.

I find a strong connection between my feelings and a certain moment in the film Angel's Egg. I'm reminded of the scene where the girl wakes up in the moment and finds that the egg she had been carrying with her throughout her journey was smashed and completely broken. However, unlike the girl, I hadn't realized that the egg was smashed until a few weeks later. After a period of discomfort from witnessing the scene, things proceeded as normal for the next few weeks. After all, I had finals in school to focus on.

However, as my winter break approached, I started to feel discomfort with the ethics of fishing. Was I hurting the fish? I had primarily caught the fish and released them, never eating my catch. Wasn't this just as meaningless as the actions of the boys who had murdered that goose? I started obsessively looking things up on Google. My searches grew quite enigmatic and obscure. For one example, I had looked up the decay time of synthetic materials that I had used to create flies. I was worried that the materials I used would never decay in the water and that I was hurting the environment with my actions.

I grew more and more discomforted with the idea of fishing over time. Things came to a head near Christmas time. I have difficulties expressing my emotions verbally (due to anxiousness), so I find that using texts to communicate my intimate feelings is easier than expressing them out loud. I decided to write a giant blurb of text to my Mom telling her that I couldn't fish any longer. I sent the text and then I think I hid in my room. I had felt that same devastation that the girl in Angel's Egg felt when her egg was cracked.

My Mom was distressed, confused, and worried about me. She was concerned about me suddenly dropping an interest that had so deeply sustained me. But in my heart, I couldn't fish any longer. I felt no urge to. The love and affection I had once felt for fishing had completely diminished. Not only that, but I had also felt I let my Mom down. She rooted for me and what I cared for, and I felt deeply regretful for causing her further stress and sadness.

Well, I wanted to just write this, I guess. I could write more, which I very well might, but there are other things I need to get to for now.



Footnotes:

* I know that the division between "nature" and "culture" is quite controversial. But this is precisely how I approached "nature." I saw "nature" as something vast and untainted that shouldn't be clouded by the whims of people.

** I shouldn't act like the bass fisherman didn't "connect with nature," but they didn't connect with it in a way that seemed satisfying to me.
ghost_garden988: (Default)
I just scrapped a draft that I was trying to write on this subject. I had gone into an in-depth look through my life that was trying to argue the following: autism is no clear and exact entity. There is no such thing as a singular autistic identity, a singular way of being autistic. In her book titled Deaf in Japan: Sign Language and the Politics of Identity, Nakamura argues this exact point, except in relation to deafness rather than autism. She argues that what it means to be deaf can change "based on the context [deaf people] found themselves in." When we try to restrict identity to a singular form, Nakamura says that "the nature of the effort is similar to a fractal pattern: the closer we get, the more forms of identity appear" (186). Nakamura's writings on identity in 2006 were attempting to address a problem she saw in Deaf political movements grounded in American identity politics. There was a tendency in these movements to restrict the meaning of what being Deaf meant to the point where this excluded those who wanted to join these communities, but who also didn't fit the rigid and narrow identity category (i.e. must be born deaf or become deaf early in life).

Does this sound familiar at all? These very same problems Nakamura mentions have also occurred in the autism community (which, I should add, isn't a single monolithic community either). There has been no shortage of gatekeeping in the community, whether it be from non-autistic parents telling autistic advocates they are "too high-functioning to be autistic," or from the autistics themselves. I've even heard suggestions in some online autism forums that entry into these communities should require proof of diagnosis. While this suggestion is obviously exclusionary to those who can't get a diagnosis, it also hints at a deeper existential insecurity in autistics. It almost seems like being diagnosed as autistic doesn't rid a person of the sense that they might not be autistic after all. This insecurity causes these individuals to create a sharp line between what does and doesn't count as autism. The doctor or psychologist's diagnosis provides the security required to prevent the diagnosis from becoming porous or even meaningless.

In a sense, this insecurity is justified. As the decades have worn on, we don't have a solid consensus on what autism is. The DSM-V doesn't help in this matter either; not only is the definition of autism provided extremely broad, but it also neglects the individual's relation with the diagnosis. Being diagnosed with autism early in life, for example, is very different from being diagnosed later on. The degree of identification with the diagnosis can greatly vary. In Deaf in Japan, Nakamura mentions an individual who didn't view themselves as deaf, even if they experienced some degree of hearing impairment. The same thing occurs with autism. Just because someone is diagnosed as autistic doesn't mean they view themselves as autistic. The diagnosis might matter very little to them, regardless of how they've been viewed in other's eyes. They might say they struggle a little with socializing, or they perhaps lined up marbles in a row when they were younger. Does this make them autistic?

Ido Kedar and Mel Baggs, from what I recall of their writings, both mention that being autistic doesn't necessarily mean you're going to relate to every other autistic person. Kedar mentions that a person with Asperger's who interviewed him struggled greatly to relate with his experiences, almost as though they'd struggled with two completely different disorders. Kedar, unlike other autistics, doesn't experience any issues with social communication. Instead, their primary problems lie in motor issues and verbal communication. The person with Asperger's, on the other hand, struggled greatly with social communication and had trouble comprehending why this wasn't the same case for Kedar. Baggs recounts that sie had poor experiences with an autistic therapist because they automatically presumed that their experiences were similar to hirs. However, sie also recounts that were autistic individuals that sie could relate to better than others, to the point where they could read each other's body language. Donna Williams, in Nobody Nowhere, also recounts a similar phenomenon with a man she met named Shaun. His father explained that he had meningitis when he was a baby and apologized for any actions he did that seemed strange. Williams, in response to Shaun's father, said that there was nothing wrong because the man was just like her (183).

All this to say that autism isn't one singular thing that's clearly definable. Just as those with the same diagnosis can strongly relate with one another, so can they feel deeply alienated from one another, whether cognizant of this fact or not. Like other disability categories, autism is a diverse phenomenon, and we can't make easy or singular conclusions about the people within it. I hope I've made my point here clear!
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I think one of the worst things about living in this era is lacking a sense of place. To no fault of our own, we grow so ingrained and embedded in our routines that we ourselves become mere automatons. I highly doubt I'm saying anything new when I mention this.

Nonetheless, I do have a place to go, one where I can see clearly--at least most of the time. In order to get there, I must first endure the strain in my leg muscles from a steady incline. Meanwhile, my mind goes off and wanders into whatever crevice of my imagination it desires. I find myself envisioning friendships from years ago, people who I can only assume have long forgotten my presence. I meditate on old interests and passions. Things that once jarred and riveted my mind now only bring brief pangs of nostalgic longing. I also think about what currently grapples me into joy and passion. Myriad thoughts come from this way and that competing for my attention.

The bushes surrounding me creep above my head, nearly forming an arch above my head. I can see only a few feet to my left and right. The trail is littered in rocks which I frequently stumble over. My feet attempt to make their way to whatever solid patch of ground they can find. Eventually, the rocks diminish and the trail flattens into smooth soil. I find myself at a junction in the trail. I can either proceed straight ahead or turn to my right. I choose to go right. Initially, I thought the trail ended not long past the junction. As it turns out however, it snakes its way through the bushes like a lazy valley river. To the right is small rock outcrop surrounded by the bushes. If you step onto it and proceed down the hill slope, you'll find two trashcans. One is partially filled with what appears to be green algae-coated water. I can only assume that hauling the trashcans to this spot must've taken a a great effort on the part of their owner.

A little further past this outcrop and I finally come to where I wanted to go. If I've brought my bike with me, I'll park it a little to the side of the trail. Unlike earlier in the trail, I can see my surroundings. If it's clear, I can make out a good view of what's around me. I once had fog envelop me here and I could only see 100 feet ahead of me. I imagined the hill I was standing on to be no mere hill but a floating island far above the cloud line. The fog that surrounded me became the borders of this lonely little island, and at its center I stood. But not this day. Today is a nice and clear day. I try to put the barking thoughts and ideas in my mind to rest. I observe and attempt to make out details in the land around me. Before long, however, they come barking back. The effort I put into silencing them depends on the amount of energy I have left to deal with them.

Sometimes its fluffy, permeable, and foggy, almost as if I'm standing nowhere at all. The land becomes a membrane that can be entered and exited. At others it's clear, crisp, sharp, as though I were watching sand course through my hands at the shoreline of some distant beach. Each detail becomes bold and resolute. I can feel that resolve pouring through me as well. Even in these moments, however, the land never electrifies me. I always come out of this place feeling more grounded and more real than I had before. I can mark only a few isolated instances where this wasn't the case. I'll come, stressed with whatever trial concern I have, and before I know it, the concern is washed away.

Oftentimes, within these places, I'll bury old memories and put them to rest. I don't really know what I mean by "burying" these memories, because they still come back to me. But, whatever I mean, it does give me some sense of clarity that I didn't have before.

After some time has passed, I'll turn around and venture my way back. Before I know it, I'm back to where I was before. And so the cycle continues, and so too does my relationship with this place.
ghost_garden988: (Default)
After a series of short cold days and long cold nights, a particularly cold day had arrived. This didn't come as a surprise to me until I went outside after holing myself up in my room throughout the morning. For a brief moment, I denied it. But the realization came soon enough; it was cold. Even in the afternoon, with the sun at its brightest, I couldn't deny this fact. I went on my bike, and forty-five minutes or so had passed before I came back to the point I had departed from. I rode through a few neighborhoods in what had became a routine for me, a routine tested by the time span of nearly three years. As the mundane creature of habit I am, I then recognized that it was Friday. And this Friday, unlike the previous weeks, would provide us with a nice and clear sky, the same sky that allowed for such forbidding cold. Since there were no clouds on this day, our local observatory would open up for stargazing. I could hardly resist the opportunity.

Evening arrived, and then came night. The temperature plummeted to even further depths than it was at earlier that afternoon. My excitement grew greater and greater as the time approached. After weeks of dreadful rain, followed by a period of desolate and cold sun, I'd be finally exiting my mundane routine to look up and above at the stars. I rode up those silent roads with my father, who accompanied me, and we eventually arrived at the parking lot. I was bundled up in layers and wearing a pair of gloves. As we wandered up the path to the observatory, creeks meandered under the paved trail, taking on the same hue as the cold and desolate sky above us. We found ourselves in what would appear as a grassy plain in the daytime. There were trees in the horizon, but they would hardly obscure the view of the telescopes.

If it weren't for the chatter of crowds as they made their way up, and the stars above us, it would've been a lonely night. I always find myself quite paranoid at night if I'm not accompanied by anyone. Darkness obscures my surroundings, and only the warmth of other human beings beside me provides me with comfort during the dark. In those unique and special moments at night, when I'm surrounded by the company of those I care for, I feel like anything is within reach, however far it may be. When we arrived telescopes were already pointed at the stars. Volunteers from the community assisted those that had arrived. Those who came were often accompanied by the rest of their family, but there were some solo visitors as well. I watched as one kid made their way up to the eyepiece. The volunteer gave them instruction on how to look through it, telling them not to get too close and to close one eye while observing. They eventually got the hang of it and were able to look at a binary star system. Sadly, I forget this beautiful system's name.

I cautiously approached. "Can I take a look, please?"

"Sure!" The volunteer, an older man, showed me to the telescope and briefly looked through the eyepiece. He wanted to make sure the object was still in view.

I peered through the scope and noticed, at the center, two bright dots. They were so close to one another that they almost seemed to be one star. Even through the eyepiece, the two stars appeared to be quite bright.

"This is a binary star system. The two stars orbit around one another--they're interdependent on each other gravitationally," he said.

"What kind of stars are they?"

"I'm not sure," he replied after a brief pause. Later he asked another volunteer the same question I had posed. I thanked them for his time and checked around the other telescopes. These two telescopes were positioned on the outside of a small building which itself housed another two telescopes. These latter were far larger and heavy-duty. They could be moved via remote control. All the volunteer had to do was find the object they wanted to view on their tablet. From there, they could tap the object and the scope would automatically move where they wanted it. Each time they moved the scope, the volunteer would shout "Scope moving!" to make sure that everyone stayed out of the way. Apparently someone had hit their head on the scope once since they weren't aware of its motion. Ever since, the volunteers have announced when the scope is moving in order to prevent further casualties.

I was gradually overwhelmed by the sea of people entering the observatory grounds. I'm not accustomed to crowds and too much commotion stresses me out. I shuffled around inside and outside in an attempt to find a telescope that was relatively unoccupied. In the midst of the chaos, I eventually found myself back inside the building that I was trying to get away from before. I found myself in front of a monitor with a picture of the Horsehead Nebula. Behind me was the big telescope taking image and after image. One of the volunteers adjusted these stacked images with various filters on the computer software. The technology baffles me, but I can't question what I see--a beautiful view of the grand Horsehead Nebula. The light we see in the scope from the Horsehead Nebula takes over a millennium to reach us.

People gradually crowd around the screen, and I found myself trapped in their midst, unable to venture somewhere quieter. Although I wasn't paying too much attention to who was coming and who was going, I noticed a young boy accompanied by an older woman. The boy immediately drew my eye. He seemed incredibly excited to be present at the observatory.

"This must be like going to the zoo for you, huh, Anthony," the old woman said. (I have provided the boy with a pseudonym to protect his privacy.)

I noticed that, as Anthony spoke, he rocked back and forth in a gradual swaying motion. Immediately various thoughts bubbled into my mind, and these thoughts rapidly made connections with other ones. The word autism flashed in my mind, but I dismissed that as hasty. I brushed the idea off and decided not to think about it. The whole ordeal only briefly surfaced into my consciousness before fading away back into unconscious oblivion.

Anthony made his way closer to the screen. As the volunteer lectured about some spiral galaxy, Anthony raised his hand and would wait for the volunteer to call on him. After the volunteer did so, Anthony would attempt to guess the names of the objects on the screen. Although he had strong knowledge of the names of many celestial objects, he still made his share of mistakes. I wondered how he memorized all those names. When I was young boy passionate about astronomy, my memorization stopped at Pluto. Like Anthony, I also raised many questions to the volunteers when I was younger. I caused one a great deal of annoyance by wondering whether Pluto was composed of the element plutonium. To my young mind at the time, the guess seemed more than logical.

The older woman behind Anthony kept a close eye on him. It was vague, but I could sense the smallest hint of concern mixed with embarrassment. It was one of those emotions that come off like weak aromas, vague scents that originate from nowhere. The aroma was so weak that I assumed it was only the tension I felt. I wondered how Anthony was treated at school. Had he ventured into middle and high school? I knew the kids in the schools he would eventually make his way into weren't typically kind. Most of the outcasts at my school were disabled in one way or another. They were typically viewed with either pity or annoyance. The bullying could become ruthless. Meanwhile, those, like me, who were too scared, would not dare stand up for them, focused as we were on keeping the small shreds of social status we had.

Anthony raised his hand again. After the volunteer finished his brief lecture, he called on Anthony.

"Can we look at the Andromeda Galaxy," Anthony asked.

"We certainly can," the volunteer replied. "Once we get to the Andromeda, I'll have a question to ask you, Anthony." He asked if everyone was done with viewing what was currently on the screen. After we all said yes, the volunteer shouted "Scope moving!" and we could hear the noise of the shifting mechanism of the scope as it journeyed its way to the Andromeda. On the monitor, we were greeted with a bright flash of color and light. As the image rendered, we were greeted with the sheer scope and grandeur of the Andromeda.

"What galaxy do you see here, Anthony?"

"The Andromeda!" he shouted excitedly.

"That's right! You can see two galaxies that orbit around the Andromeda. Which ones do you think they are?"

Anthony was briefly puzzled, but he answered the question with an authoritative tone: "If I were to make a guess, I would assume that those are the Large and Small Magellanic Clouds."

"That's a good guess Anthony, but those are actually two galaxies that orbit the Milky Way."

I was unable to catch the rest of the conversation. The crowd was growing larger, and my attention shifted in and out of my thoughts. Eventually, Anthony was no longer in the crowd. I didn't know where he went, and the thoughts that had briefly ventured into my mind before were no longer there. I wasn't thinking about Anthony any longer. I wasn't wondering about how he was doing at school. Instead, I soaked in the atmosphere of the stars. I moved my way around the observatory. I continued my cycle around the various telescopes. Before I left the observatory, I even managed to get a view of Uranus, a planet I don't get to see too frequently. One of the volunteers explained that, despite common belief, both Uranus and Neptune have rings.

My father was growing tired, and he was also my ride home. I too was growing tired, and our orange tabby was waiting for us at home. When I came home, I knew he would hop up on my lap and lie down on the couch with me. This is exactly what he did. Like me, our orange tabby is quite a mundane creature.

--

"Did you think Anthony was autistic?" my father asked me the next morning.

This wasn't the first time I had gotten this question after coming back from the observatory, as kids that my father believed were autistic did come quite frequently to the observatory. It was no wonder my father pointed them out to me so frequently: I was autistic. It only seemed logical that that would give me a special knowledge of whether those around me are autistic or not. However, whenever I'm asked this question, I always feel a hint of discomfort and disagreement. It's not that I know for sure that these kids aren't autistic; it's that I wonder whether I'm truly an authority on the matter. I'm just some random person who was given the diagnosis when I was much younger by an educational psychologist who knew me for a fateful few hours. I don't even like paying too much attention to the fact myself. For years I've fought with accepting my diagnosis and the history that accompanies it, and this struggle in turn led to me distancing myself from others I considered autistic. Who was I to tell someone whether they were autistic or not?

Instead of telling my father this, I set aside those thoughts. I didn't do this because I felt that my father didn't support or care for me. He is quite caring and supportive. I don't know why I didn't divulge my thoughts.

"Yes," I said, "I do think Anthony was autistic."

I don't know if Anthony or his family know about autism. I don't even know if they consider Anthony autistic. All I have as an outside observer are vague impressions, vague insights, and my own creative imagination. However, I, for a moment, will assume that Anthony was in fact autistic. I'll assume that he was, like me, diagnosed when he was younger. If that is the case, I wonder about the struggle he went through. Did he receive a battery of therapies like I did? Did his mother make cold calls to any organization or institution that could help her child? Did his parents seek whatever means they could, like many others, to help Anthony "recover" from his autism? Did he also feel that sense of alienation from others that many autistics feel? Did he get bullied?

But I also wonder other things too. Does he have friends or loved ones that truly care for him? Will he ultimately come to dismiss those who try to harm him and recognize how trivial they are? Will he feel resolve around his own diagnosis and come to his own conclusions upon it?

As I ask these questions, I wonder if I'm overextending my reach and assuming something that isn't there. I now recognize that, of all these questions, only one remains truly important: Will he continue to love the stars?

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ghost_garden988

February 2023

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